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Bioethics in popular science : evaluating the media impact of The Immortal Life of Henrietta Lacks on the biobank debate

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posted on 2023-08-05, 11:07 authored by Matthew C. Nibset, Declan Fahy

The global expansion of biobanks has led to a range of bioethical concerns related to consent, privacy, control, ownership, and disclosure. As an opportunity to engage broader audiences on these concerns, bioethicists have welcomed the commercial success of Rebecca Skloot’s 2010 bestselling book The Immortal Life of Henrietta Lacks. To assess the impact of the book on discussion within the media and popular culture more generally, we systematically analyzed the ethics-related themes emphasized in reviews and articles about the book, and in interviews and profiles of Skloot.

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American University (Washington, D.C.)

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http://hdl.handle.net/1961/auislandora:77717

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